Thursday, March 19, 2009

Some of my ramblings

Of a night, to help Josh go to sleep, I dim all the lights except for a lamp, and play classical music. There's one piece I love called O mio babbino caro by Giacomo Puccini. Cant say I listen to classical an awful lot, but something about this piece touches me, and I feel the story in it.

When we first came to the hospital, I kept looking at the bigger picture; if Josh could just sit up and swallow, for example, that would be okay. Now, I have to keep reminding myself it's all about the baby steps. Now, I think if we can get Joshy well enough to get off the antibiotics, he wont need the IV, and I can pick him up more easily.

In such a horrible horrible situation, I look for things to be grateful for, such as thank goodness that our 4 other kids are at school, so they're cared for during the day. Some people groan when I mention cafeteria food; I don't mind it, and especially love my hash brown and mushrooms for breakky with a big cappuccino! I love that I can have fresh linen to sleep on every night, and fresh towels everyday. I'm grateful we are in our own room, and that I can sleep right beside Josh every night. And thank goodness we have access to such good medical services.

This is such an unreal situation to be in. I can not believe I'm here, right in the middle of every parents worst nightmare.

Sometimes I look at Josh and think, its not him; its another boy and my Joey is at home. But of course, i know it is him.

In the blink of an eye, our lives have changed forever.

3 comments:

Nicole Bryon said...

Wendy and family .. my heart goes out to you. I was listening to the radio this morning and heard of Josh's accident and all of the generous people donating money. It broke my heart listening. Then just now I was browsing LSBS, as I do almost everyday, and saw the link to your blog. My thoughts and prayers are with you all - wishing you the strength to cope with the twists and turns that you are facing. Hugs, Nicole

Kerri said...

Hi There,
My daughter was diagnosed with a very rare genetic brain disorder when she was nearly 6 months old.
She is now 17 months. I just wanted to offer my prayers for your little boy. When the time is right for you please visit my daughters website www.beautifulbillee.com.au I can give you advice on alternate but very effective physical and other therapies that we do with Billee.
Warmest regards Kerri

Veronica said...

Wendy, I can not imagine going thou what you are going thou but remember being the sister of one very sick little boy. At times I would blink and think that maybe I just didn't see my little brother there and it was someone else. That feeling I will never forget. I truly wish I can come right out and give you a big hug because soemtimes that it what we need.
Hugs, Veronica

 
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