The Opthamologist is happy with the lubrication of Joshy's eyes, so we pretty much are to continue doing what we're doing which is applying 2 types of eye drops / ointment every 3 or 4 hours. Josh has scarring (which we're aware of) caused from Dry Eye (most likely in the first few days of PICU) which is permanent, but does not affect his vision.
In this pic, its the white-ish marks below his pupils.
I did manage to sort through Joshy's clothes today, and threw most of them into the bag to give away. Most of them are just not suitable now because there are too many buttons, or they don't stretch etc. That was really tough. I also found it a bit hard giving Josh a feed for the first time in "public". I'm sitting there trying to look as if I knew what I was doing, but feeling as if the occupants of the waiting room were all watching us...
But on a good note, I can sing all of Skid-a-marink now without crying. A crack in my voice maybe, but no tears.
The outing must of really knocked him about, because when I got back from shopping at 5.30, he was asleep, and has remained that way!
3 comments:
It is such wonderful news that Joshy is home - hopefully things will become somewhat more "normalised" as you ease into your new way of life. With regards to feeding Josh, etc in public - I'm sure you'll be an expert in no time - but I know how you feel about all eyes on you - my eldest son has ADHD, Oppositional Defiant Disorder and PDD-NOS (autism) and we have been the "centre of attention" on many occasions, where I feel everyone in the room is judging my parenting skills, looking away with embarrassment for me, etc while my son is having a major meltdown, but I try to believe that they feel about me the same way that I would feel if I saw someone else having the same difficulties - that is, with empathy, not judgement. Hang in there, hopefully it will get easier!
Oi. Parabéns por seu excelente blog. Gostaria de lhe convidar para visitar meu blog e conhecer alguma coisa sobre o Brasil. Abração
Hi Wendy, John and kids
That's great you are all home together. I know it was hard sorting through the clothes but I promise you it gets easier. We have an appt at the hospital on the 6th so I will try an come for a visit.
Give Josh a kiss from us.
Liz and ashleigh
Post a Comment